Skaneateles, New York (NCC News) — Tim Green was diagnosed with Amyotrophic Lateral Sclerosis (ALS) in August 2016, but first publicized the news in November 2018 when it was almost impossible to hide for any longer.
“We actually would lift weights together and he had trouble holding onto the weight,” said Tim’s son, Troy. “Then he said that when he was trying to talk the words couldn’t come out fast enough.
“Ultimately the reason we made the news public is because he couldn’t really hide it anymore,” Troy said. “You could hear it in his voice and see it in the way he walked.”
Troy said he has always had a close relationship with his dad, which has only strengthened during this new journey.
“We would always say we wanted to work together,” Troy added. “When I was younger I always used to say we’re going to live in the same house.”
Troy has been by his dad’s side from the moment Tim started feeling symptoms to sitting next to him during an interview on 60 Minutes. Troy is also the brains behind the idea of TackleALS.com, a website used to raise money for ALS research at Massachusetts General Hospital, where Tim is being treated. Anyone who donates $1,000 or more is eligible to become a team captain on the website. Currently, 81 teams are set up on TackleALS.com and more than $1.5 million.
Stu Lisson, one of Tim Green’s long-time friends, said that social media is beneficial in spreading the word about the website.
“As more and more people find out about Tim’s situation they’re using the URL and links to hook up with [the website] and I think as a result of that people are logging on and they’re donating and it’s becoming quite effective,” Lisson said.
Not only are there an immense amount of donations to TackleALS.com so far, but Troy said the response locally is incredible as well. He said local businesses have reached out, including the Barclay Damon Law Firm who created a team on TackleALS.com that raised more than $100,000, the most raised by a local team.
“The response locally has been a lot more than I thought it would be,” Troy said. “Not that I had low expectations, but there has just been so much support, people sharing it, people talking about it, people donating, people reaching out. It’s been great.
“The plan is to continue to raise money as aggressively as possible and figure out a way to beat it,” Troy added.